Research the Cure Webinar – June 2024
Join Sharmila Collins and Dr Ciro Chiappini as they discuss the potential for nanoneedles to deliver treatments in EB.
12 events found.
Events
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Online
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Family Forum – Hand Hackathon
OnlineHow do you dress your hands to try to minimise scarring, contraction and damage? If you have EB, or care for someone who does, join us for our Hand Hackathon where we can all share our knowledge of how we manage hands. Please note that...
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Research the Cure Webinar – September 2024
Prof Katsuto Tamai joins us for our second webinar of 2024, to talk about his work - a novel approach to severe dystrophic epidermolysis bullosa.
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Butterfly Run 2024
Queen Elizabeth Olympic Park, LondonIt’s time to fly! Cure EB’s Butterfly Run is a celebration of inclusivity taking place at the Queen Elizabeth Olympic Park in London on Sunday 29th September 2024 (previously advertised as Sunday 22nd). We are encouraging as many people of all abilities to run, walk,...
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Cure EB Family Day 2024
Tickets are no longer available to pre-book. Please email [email protected] to enquire about additional spaces.If you or a family member have EB, then join us for our Family Day Sunday 29th September at the Queen Elizabeth Olympic Park in London! Cure EB Family Day is...
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Research the Cure Webinar – November 2024
OnlineThank you to Chiesi for the provision of an arm’s length educational grant to support this webinar series. Gene editing Dr Joanna Jackow, King's College London, will be joining us for our November webinar to talk about her gene editing research and it's potential for...
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Butterfly Speaker Lunch with Mishal Husain and Hadley Freeman
Orrery 55 Marylebone High Street, London, United KingdomTo launch our Big Give Christmas Challenge week we invite you to our fabulous Butterfly Speaker Lunch at the elegant French restaurant, Orrery, in the heart of Marylebone on 3rd December. We are thrilled to have Mishal Husain, BBC Radio 4 Today programme presenter and...
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Family Forum – Losartan in RDEB with Prof Dimitra Kiritsi
OnlineProf Dimitra Kiritsi, Aristotle University of Thessaloniki, is joining our Family Forum online to talk about the recently published results of the REFLECT study. In this phase 1/2 clinical trial, losartan was well tolerated by children with RDEB, and the trial provided preliminary evidence of...
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Research the Cure Webinar – April 2025
Mission EB Dr Anna Martinez is joining us to talk about Mission EB, the first large-scale stem cell clinical trial in EB. Mission EB was led by Anna at Great Ormond Street Hospital in collaboration with clinicians at Birmingham's Children's Hospital. The trial was funded...
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London Marathon 2025
The TCS London Marathon is an incredible experience! Taking place in April, the route takes in many of London's best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. If you would be interested in running for Cure EB in 2026, do contact...
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Family Forum – Foot Hackathon
OnlineHow do you dress feet to try to minimise damage and scarring and to maintain mobility? If you have EB, or care for someone who does, please join us for our Foot Hackathon - an opportunity for EB patients and carers to share knowledge and...
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Brave Wings Festival
Highgate School North Road, LondonJoin us for our Brave Wings Festival on 13th July! Family festival for all ages. We're taking over the Mills Centre at London's Highgate School for crafts, arts, music, film and fun. At the end of day join us for live music on the grass,...