Brave Wings Festival
Save the Date for our Brave Wings Festival.
12 events found.
Events
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Research the Cure webinar – EBSkinEdit with Prof Fernando Larcher
OnlineGene edited skin in RDEB Join Sharmila Collins as she talks to Prof Fernando Larcher about EBSkinEdit, a gene-edited skin for RDEB. This webinar is free to join and open to all with an interest in EB. There will be an opportunity to ask questions,...
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Silver Butterfly Dinner 2026
Join us on Thursday 14th May for a night of champagne, dinner, entertainment and auctions in the stunning surroundings of One Marylebone. Tickets can be purchased individually or as a table of ten.
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London Marathon 2026
The TCS London Marathon is an incredible experience! Taking place on Sunday 26 April 2026 , the route takes in many of London’s best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. With a charity place from Cure EB you could...
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Research the Cure webinar – December 2025
OnlineChange of date Due to unforeseen circumstances, our webinar with Prof Jakub Tolar is now on Thursday 11th December at 2pm. If you had already registered, your place has been transferred. We apologise for any inconvenience this may cause. Registration remains open to all. Immune...
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Butterfly Speaker Lunch
Stephen Mangan in conversation with Hadley Freeman To launch our Big Give Christmas Challenge week we invite you to our fabulous Butterfly Speaker Lunch at the elegant French restaurant, Orrery, in the heart of Marylebone on 2nd December. We are thrilled to have Stephen Mangan,...
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Family Day 2025
Cure EB Family Day is a free event for our wonderful EB community to come together, have fun and catch up on the latest EB research news. If you or a family member have EB, then join us for lunch, and then while the adults...
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Butterfly Run 2025
Queen Elizabeth Olympic Park, LondonOur Butterfly Run is back on Sunday 5th October 2025 at Queen Elizabeth Olympic Park in London. Book now!Please get in touch ([email protected]) if you are interested in sponsoring the event or being one of our charity partners.
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Research the Cure webinar – September 2025
OnlineDevelopment of a personalized stem cell therapy for RDEB delivered by cell suspension Prof Ganna (Anya) Bilousova is joining us to talk about the pre-clinical development of a personalized stem cell therapy for recessive dystrophic epidermolysis bullosa delivered via cell suspension.When? Thursday 25th September 2025,...
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Brave Wings Festival
Highgate School North Road, LondonJoin us for our Brave Wings Festival on 13th July! Family festival for all ages. We're taking over the Mills Centre at London's Highgate School for crafts, arts, music, film and fun. At the end of day join us for live music on the grass,...
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Family Forum – Foot Hackathon
OnlineHow do you dress feet to try to minimise damage and scarring and to maintain mobility? If you have EB, or care for someone who does, please join us for our Foot Hackathon - an opportunity for EB patients and carers to share knowledge and...
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London Marathon 2025
The TCS London Marathon is an incredible experience! Taking place in April, the route takes in many of London's best landmarks including Buckingham Palace, the Cutty Sark, Tower Bridge and Canary Wharf. If you would be interested in running for Cure EB in 2026, do contact...