Prof Dimitra Kiritsi, Aristotle University of Thessaloniki, is joining our Family Forum online to talk about the recently published results of the REFLECT study. In this phase 1/2 clinical trial, losartan was well tolerated by children with RDEB, and the trial provided preliminary evidence of...
Tickets are no longer available to pre-book. Please email [email protected] to enquire about additional spaces.If you or a family member have EB, then join us for our Family Day Sunday 29th September at the Queen Elizabeth Olympic Park in London! Cure EB Family Day is...
It’s time to fly! Cure EB’s Butterfly Run is a celebration of inclusivity taking place at the Queen Elizabeth Olympic Park in London on Sunday 29th September 2024 (previously advertised as Sunday 22nd). We are encouraging as many people of all abilities to run, walk,...
How do you dress your hands to try to minimise scarring, contraction and damage? If you have EB, or care for someone who does, join us for our Hand Hackathon where we can all share our knowledge of how we manage hands. Please note that...
Join us for our last Family Forum event of the year to find out more about what we are working on at Cure EB and let's have an informal chat about EB research generally. Hosted by Cure EB founder, Sharmila, and Community Liaison Officer, Kate....
If you or a family member have EB, then join us for our Family Day Sunday 24th September at the Queen Elizabeth Olympic Park in London! Cure EB Family Day is for EB families to connect, have fun, and catch up on the latest EB...
