As a charity set up by a family directly affected by Epidermolysis Bullosa, Cure EB understand the desperate need for, and the potentially life-changing impact of, research into this devastating condition.
Cure EB Family Forum
Upcoming events
Family Day
Our Family Day will be on Sunday 5th October 2025 at the Queen Elizabeth Olympic Park in London.
The Family Forum has been created in order to keep those impacted by EB updated on current and potential EB research, as well as how to support our search for a cure. It is free to join.
If you or a family member have EB, sign up to the Family Forum to hear about:
- Regular email updates on EB research and Cure EB news.
- Annual Cure EB newsletter.
- Access to research webinars.
- Online get together for people living with EB and their families.
- Entrance to Cure EB Family Day.
- Information on Cure EB fundraising events.
How else can I get involved?
You don’t have to join the Family Forum to be a part of curing EB!
You could:
- Follow us on FaceBook, Instagram, and Twitter
- Join an event
- Fundraise for us
- Let others know about Cure EB
Your support will help us continue to fund research into effective treatments and ultimately a cure for EB.