Sohana in BBC Three’s ‘Me & My Butterfly Skin’
Sohana talks through what EB is like as a teenager in BBC Three’s Living Differently series....
06 September, 2018
Media
11 June, 2018
‘Butterfly child’ given life-saving skin
A seven year old boy with Junctional Epidermolysis Bullosa child received genetically modified skin grafts and almost two years later his skin is functioning as normal. Skin cells were taken from Hassan in 2015 and genetically modified by a group of researchers. The cells were...
18 December, 2015
BBC News – The promise of gene editing
Sharmila Nikapota, the mother of a child with a rare genetic disorder, has high hopes for gene editing...
29 September, 2015
Mirror Newspaper – Schoolgirl’s skin blisters and burns if mum hugs her
http://www.mirror.co.uk/news/real-life-stories/schoolgirls-skin-blisters-burns-mum-6491436...
22 November, 2014
Guardian Newspaper – My fight to save my daughter’s skin
http://www.theguardian.com/lifeandstyle/2014/nov/22/our-fight-to-save-sohana-research-fund...
29 November, 2013
BBC News – The girl whose skin never heals
http://www.bbc.co.uk/news/health-24902658...