[vc_row css_animation="" row_type="row" use_row_as_full_screen_section="no" type="full_width" angled_section="no" text_align="left" background_image_as_pattern="without_pattern"][vc_column][vc_column_text css=""]Three mums, one mountain, one mission - to cure EB! On 20th June, three EB mums - Kate, Sharmila and Clara - will set out to climb Mount Olympus in Greece over the course of two days, with...
We had an amazing day at BGC Charity Day! Our patron, Damian Lewis, worked the trading floor like a pro...
We're thrilled to be able to announce that we have been chosen by BBC Radio 4 to be the subject of one of their appeals this year!...
We have surpassed our target of £30,000 in this year’s Big Give Christmas Challenge! We are so incredibly grateful to our supporters...
Wow! What a fantastic day we had on Sunday. The sun shone and so did the smiles of our runners and supporters. The results are in...
Jodie Comer was on hand (or at least, on zoom!) on 11th September this year to represent Cure EB at BGC and Cantor Fitzgerald’s annual charity day, this year held virtually....
What a fantastic day we had at the GFI Charity Day this year, thank you to our Patron Damian Lewis for taking the phones...
Thank you and well done to all the families that took part in Parallel London's 100m, 1k, 5k and 10k races this weekend....
Thank you to the London International Orchestra, whose 30th Anniversary concert was given in support of Sohana Research Fund this year....
The Silver Butterfly Dinner hosted and organised by the Sohana Research Fund at RIBA on 14 May 2015 raised over £522,000 for RDEB research. 100% of proceeds from the night go to research....