3 Mums, 1 Mountain, 1 Mission
The training has been tough, the climb will be tougher, but they're motivated by the suffering of children like Poppy, Sohana and Darcy who are challenged by EB everyday....
10 June, 2026
Fundraising
13 September, 2023
BGC Charity Day 2023
We had an amazing day at BGC Charity Day! Our patron, Damian Lewis, worked the trading floor like a pro...
26 April, 2023
Listen out for us on Radio 4!
We're thrilled to be able to announce that we have been chosen by BBC Radio 4 to be the subject of one of their appeals this year!...
07 December, 2022
Big Give Christmas Challenge raises over £30,000!
We have surpassed our target of £30,000 in this year’s Big Give Christmas Challenge! We are so incredibly grateful to our supporters...
27 September, 2022
The Butterfly Run – the results are in!
Wow! What a fantastic day we had on Sunday. The sun shone and so did the smiles of our runners and supporters. The results are in...
15 September, 2020
Jodie Comer supports Cure EB at BGC Charity Day
Jodie Comer was on hand (or at least, on zoom!) on 11th September this year to represent Cure EB at BGC and Cantor Fitzgerald’s annual charity day, this year held virtually....
14 September, 2017
Fantastic GFI Charity Day 2017
What a fantastic day we had at the GFI Charity Day this year, thank you to our Patron Damian Lewis for taking the phones...
03 September, 2017
Parallel London & Family Day 2017
Thank you and well done to all the families that took part in Parallel London's 100m, 1k, 5k and 10k races this weekend....
07 December, 2016
Cadogan Hall Concert
Thank you to the London International Orchestra, whose 30th Anniversary concert was given in support of Sohana Research Fund this year....
22 May, 2015
The Silver Butterfly Dinner 2015 raised over £522,000
The Silver Butterfly Dinner hosted and organised by the Sohana Research Fund at RIBA on 14 May 2015 raised over £522,000 for RDEB research. 100% of proceeds from the night go to research....