• Virgin London Marathon

    Sohana with her dad James after he finished the 2017 London Marathon

  • Cure EB Butterfly Run

    The Butterfly Run is back! After a break due to the pandemic, we are delighted to invite you back to our Butterfly Run at the Olympic Park in London. It’s ‘Time to Fly!’ Cure EB’s Butterfly Run is a celebration of inclusivity taking place on Sunday...

  • Cure EB Family Day

    Our Cure EB Family Day is a chance for EB families to connect with each other, while catching up on the latest EB research news. After a hiatus of three years due to the pandemic, we are delighted to have an opportunity to get our...

  • Research the Cure Webinar

    Online

    In the lead-up to Rare Disease Day, join us on Monday 27th February for the first of our lunchtime Research Webinars. Prof John McGrath will be joining us to talk about the current EB research landscape. The webinar is free to join - click here...

  • London Marathon 2023

    Registration is now closed for this year's TCS London Marathon. However, three amazing runners are taking on the 26 mile challenge for us on 23 April 2023, find out how to support them below! John Halliwell Elspeth West Nicholas Crowson If you would be interested...