Sohana in BBC Three’s ‘Me & My Butterfly Skin’
Sohana talks through what EB is like as a teenager in BBC Three’s Living Differently series....
06 September, 2018
Living with EB
11 June, 2018
‘Butterfly child’ given life-saving skin
A seven year old boy with Junctional Epidermolysis Bullosa child received genetically modified skin grafts and almost two years later his skin is functioning as normal. Skin cells were taken from Hassan in 2015 and genetically modified by a group of researchers. The cells were...
03 September, 2017
Parallel London & Family Day 2017
Thank you and well done to all the families that took part in Parallel London's 100m, 1k, 5k and 10k races this weekend....
29 September, 2015
Mirror Newspaper – Schoolgirl’s skin blisters and burns if mum hugs her
http://www.mirror.co.uk/news/real-life-stories/schoolgirls-skin-blisters-burns-mum-6491436...
29 November, 2013
BBC News – The girl whose skin never heals
http://www.bbc.co.uk/news/health-24902658...