The Abe Fund was set up by Abe’s parents, Natasha and Alex.
Abe was born with Epidermolysis Bullosa (‘Butterfly Skin’) in April 2023. Epidermolysis Bullosa (EB) is a painful genetic skin condition that causes the skin to tear or blister at the lightest touch. DEB (Dystrophic EB) is one of the most severe subsets of EB.
Whilst coping with the emotional upheaval of learning that your child has a severe currently incurable genetic condition, his parents also learnt about its consequences. People living with EB have skin that cannot bind together, so any trauma or friction can cause painful blisters, open wounds, and scarring. It is excruciating painful and has much wider health implications; eye abrasions can lead to blindness and many die of an aggressive form of skin cancer in their early adulthood. EB has an absolutely devastating impact on the patient’s physical and mental wellbeing, as well as causing endless stress and uncertainty for both parents and child.
Abe’s family have partnered with Cure EB in our mission to find a cure.
All money to the Abe Fund goes towards a restricted fund within Cure EB which focuses on investing in biotechs that are working in the EB space.
To give towards other projects, head to our Donate page.
