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Family Forum – Foot Hackathon

19 June @ 1:30 pm - 2:30 pm

How do you dress feet to try to minimise damage and scarring and to maintain mobility?

If you have EB, or care for someone who does, please join us for our Foot Hackathon – an opportunity for EB patients and carers to share knowledge and discuss how to manage feet.

Please note that this is not medical advice, but a forum to share what has and hasn’t worked for you/your family member.

When? Thursday 19th June, 1.30pm – 2.15pm BST.

Where? Online – you can join from anywhere in the world

Please note that this is a live event only – a recording won’t be shared after the event.

This event is open to all Family Forum members.

  • If you are already part of our Family Forum, you will be emailed a link to register for this free event.
  • If you are not yet a member, sign up here – it’s free to join.

Our Family Forum is an informal group for EB patients and their families/carers. Visit our Family Forum page for more information.

Hosts

Sharmila Collins is a founder and trustee of Cure EB and mum to 22 year old Sohana

Kate Gee is Cure EB’s Family Liaison Officer and mum to 13 year old Poppy

Natasha Hersham is mum to 2 year old Abe

Erin Ward is mum to 2 year old Albi

Details

Date:
19 June
Time:
1:30 pm - 2:30 pm

Venue

Online

Organiser

Cure EB