Family Day 2025

Cure EB Family Day is a free event for our wonderful EB community to come together, have fun and catch up on the latest EB research news.

If you or a family member have EB, then join us for lunch, and then while the adults hear from the EB experts, the children will be entertained with games and crafts. There will also be plenty of time for tea and cake so that families can catch up with old friends and make some new ones!

When? Sunday 5th October

Where? Timber Lodge, Queen Elizabeth Olympic Park, London

We know that London isn’t convenient for everyone, so we have secured limited funding to help some with access and travel. If you live far away and would like to come, please do get in touch early, so as not to miss out.

Prof John McGrath 

John is Professor of Molecular Dermatology and Head of the Genetic Skin Disease Unit at King’s College London, and a Consultant based at Guy’s Hospital in London, where he is Head of the St John’s Institute of Dermatology. He is an internationally renowned expert in EB, and a past president of the European Society for Dermatological Research.

Dr Pablo López Balboa

Pablo is a Paediatrician with a special interest in Paediatric Dermatology. In 2021, he joined the paediatric dermatology team at Great Ormond Street Hospital for Children as a senior clinical research fellow, focusing on stem-cell therapy and drug repurposing in genodermatoses. His current work centres on rare skin diseases, biologic therapies, hair disorders, and laser treatments.

Dr Rob Hynds

Rob is a biologist at University College London’s Great Ormond Street Institute of Child Health, where he leads the EpiCENTR research group. His team studies how stem cells and gene therapies can be used to repair and regenerate airways, with the goal of developing new treatments. He is co-leading a research project to explore a new therapy for airway problems in Junctional EB.

Dr Richard Williams

Richard is CEO of Healome Therapeutics, a spin-out company from the University of Birmingham driving the development of more effective, safer, and easier to use treatments for ocular surface conditions that can threaten vision. Interests in EB focus on ways of helping maintain functional vision and guide the healing of the surface of the eye while reducing the risk of scarring.

Butterfly Run 2025

Why not join us in the morning for our family friendly Butterfly Run? This accessible event is held at the same venue, and we are encouraging as many people of all abilities to run, walk, wheel or whatever you can do to complete a 1k, 5k or 10k race.