Cure EB Butterfly Run

The Butterfly Run is back!

After a break due to the pandemic, we are delighted to invite you back to our Butterfly Run at the Olympic Park in London. It’s ‘Time to Fly!’

Cure EB’s Butterfly Run is a celebration of inclusivity taking place on Sunday 25th September 2022.  We are encouraging as many people of all abilities to run, walk, wheel, or whatever you can do to complete a 1k, 5k or 10k race.

All entrants will receive a Butterfly Run race t-shirt, race number, time chip and finisher medal.

Help to raise vital funds to cure EB by making a donation or raising sponsorship.

EB families, find out more about our Cure EB Family Day.

Why Butterfly Run?
Cure EB funds medical research to find a cure for all types of epidermolysis bullosa (EB), a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as ‘fragile as a butterfly’s wings’.

What we want most is for children and adults to fly free from the pain of EB and make the blisters and wounds stop.

Visit our research pages to find out more about the research we fund.