Sharmila is the founder of Cure EB (formerly Sohana Research Fund) and Sohana’s mother. She graduated from Cambridge University with a degree in veterinary medicine in 1994 and worked in general practice gaining a certificate in veterinary radiology. She stopped work soon after Sohana was born. Optimism within the research community coupled with chronic underfunding of EB medical research led to the idea for a dedicated research fund. She is the driving force behind the fund, planning events, thinking up fundraising challenges, meeting researchers and speaking at events. With the growth of the fund she plans to concentrate on maximising research progress by building collaborations between researchers, other funding bodies and relationships with biotech to realise the ultimate aim of the fund –to #cureEB. She has three other daughters and a dog.

“Watching Sohana suffer the agonising pain of EB everyday is the best incentive to push forward research to find a treatment for all”