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DTSTART;TZID=Europe/London:20250619T133000
DTEND;TZID=Europe/London:20250619T143000
DTSTAMP:20260403T064123
CREATED:20250521T132326Z
LAST-MODIFIED:20250610T102534Z
UID:20558-1750339800-1750343400@cure-eb.org
SUMMARY:Family Forum - Foot Hackathon
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]How do you dress feet to try to minimise damage and scarring and to maintain mobility? \nIf you have EB\, or care for someone who does\, please join us for our Foot Hackathon – an opportunity for EB patients and carers to share knowledge and discuss how to manage feet. \nPlease note that this is not medical advice\, but a forum to share what has and hasn’t worked for you/your family member.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]When? Thursday 19th June\, 1.30pm – 2.15pm BST. \nWhere? Online – you can join from anywhere in the world \nPlease note that this is a live event only – a recording won’t be shared after the event. \nThis event is open to all Family Forum members. \n\nIf you are already part of our Family Forum\, you will be emailed a link to register for this free event.\nIf you are not yet a member\, sign up here – it’s free to join.\n\nOur Family Forum is an informal group for EB patients and their families/carers. Visit our Family Forum page for more information.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Hosts” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”20559″ alignment=”center” css=”” qode_css_animation=””][vc_column_text css=””] \nSharmila Collins is a founder and trustee of Cure EB and mum to 22 year old Sohana \n[/vc_column_text][/vc_column][vc_column width=”1/4″][vc_single_image image=”20560″ alignment=”center” css=”” qode_css_animation=””][vc_column_text css=””] \nKate Gee is Cure EB’s Family Liaison Officer and mum to 13 year old Poppy \n[/vc_column_text][/vc_column][vc_column width=”1/4″][vc_single_image image=”20567″ alignment=”center” css=”” qode_css_animation=””][vc_column_text css=””] \nNatasha Hersham is mum to 2 year old Abe \n[/vc_column_text][/vc_column][vc_column width=”1/4″][vc_single_image image=”19628″ alignment=”center” css=”” qode_css_animation=””][vc_column_text css=””] \nErin Ward is mum to 2 year old Albi \n[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/familyforum-foothackathon/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2025/05/250619-Foot-Hackathon-feature-image.png
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