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X-WR-CALDESC:Events for Cure EB
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260604T130000
DTEND;TZID=Europe/London:20260604T140000
DTSTAMP:20260521T171506
CREATED:20260429T101443Z
LAST-MODIFIED:20260511T091628Z
UID:21539-1780578000-1780581600@cure-eb.org
SUMMARY:Research the Cure webinar - EBSkinEdit with Prof Fernando Larcher
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Gene edited skin in RDEB \nJoin Sharmila Collins as she talks to Prof Fernando Larcher about EBSkinEdit\, a gene-edited skin for RDEB\, gene editing research funded by Cure EB. \nThis webinar is free to join and open to all with an interest in EB. \nThere will be an opportunity to ask questions\, but you can also submit questions in advance here.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Register now[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]When? Thursday 4th June 2026\, 1pm \nWhere? Online\, join from wherever you are \nHow? Register online to book your free place.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”21546″ css=”” qode_css_animation=””][/vc_column][vc_column width=”2/3″][vc_column_text css=””]Prof Fernando Larcher is a Principal Investigator in the Epithelial Biomedicine Division at the Biomedical Innovation Department of the public research institute CIEMAT and Associate professor of Biochemistry at the Department of Bioengineering of University Carlos III of Madrid. His research focuses on various aspects of skin regenerative medicine\, including cell and gene therapy for rare skin diseases.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”20828″ css=”” qode_css_animation=””][/vc_column][vc_column width=”2/3″][vc_column_text css=””]Sharmila Collins is founder and trustee of Cure EB. Her oldest daughter\, Sohana\, has RDEB. When Sohana was born in 2002\, there was little prospect of an effective treatment let alone cure. Sharmila and her husband set up Cure EB (formerly the Sohana Research Fund) in 2011 as charity dedicated to funding researcher into effective treatments and a cure for EB.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Register now to join this free webinar[/vc_column][/vc_row]
URL:https://cure-eb.org/event/rtc-ebskinedit/
LOCATION:Online
CATEGORIES:Research Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/04/260604-Fernando-Larcher-EBSkinEdit-RTC-webinar-feature-image.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260628
DTEND;VALUE=DATE:20260629
DTSTAMP:20260521T171506
CREATED:20260423T112723Z
LAST-MODIFIED:20260423T112841Z
UID:21534-1782604800-1782691199@cure-eb.org
SUMMARY:Brave Wings Festival
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Save the Date for our Brave Wings Festival.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/brave-wings-festival-2026/
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/04/2026-Brave-Wings-900x450-Website-events-news-research-featured-image.png
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