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X-WR-CALNAME:Cure EB
X-ORIGINAL-URL:https://cure-eb.org
X-WR-CALDESC:Events for Cure EB
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251202
DTEND;VALUE=DATE:20251203
DTSTAMP:20260502T044121
CREATED:20250804T152350Z
LAST-MODIFIED:20251125T102733Z
UID:20911-1764633600-1764719999@cure-eb.org
SUMMARY:Butterfly Speaker Lunch
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=”.vc_custom_1761828417290{margin-bottom: 25px !important;}”] \nStephen Mangan in conversation with Hadley Freeman\nTo launch our Big Give Christmas Challenge week we invite you to our fabulous Butterfly Speaker Lunch at the elegant French restaurant\, Orrery\, in the heart of Marylebone on 2nd December. \nWe are thrilled to have Stephen Mangan\, actor\, comedian and children’s author\, in conversation with best-selling author and Sunday Times journalist Hadley Freeman. \nOn arrival\, you will be welcomed with Champagne on the rooftop terrace\, before being treated to a sumptuous and delicious three course lunch\, interspersed with fundraising and fascinating chat. \nWe look forward to welcoming you at 11:45am on Tuesday 2nd December 2025. If you have any questions ahead of booking tickets\, please get in touch with us.[/vc_column_text][vc_column_text css=””] \nPlease note: Online booking closes midnight Thursday. \n\n        \n      \n    [/vc_column_text][vc_column_text css=””]Please note: When purchasing a ticket\, your personal data will be collected in order to facilitate the management of\, and communications ahead of\, the event. Your email address will not be used for further marketing purposes unless you have explicitly asked us to do so\, and from which you can opt out at any time.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-speaker-lunch-2025/
CATEGORIES:Speaker Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2025/08/900x450-2025-Speaker-Lunch-featured-image-2.png
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DTSTART;TZID=Europe/London:20251211T140000
DTEND;TZID=Europe/London:20251211T150000
DTSTAMP:20260502T044121
CREATED:20251003T081730Z
LAST-MODIFIED:20251119T174337Z
UID:21016-1765461600-1765465200@cure-eb.org
SUMMARY:Research the Cure webinar - December 2025
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=”.vc_custom_1763574179683{background-color: #F2F2F2 !important;}”]Change of date \nDue to unforeseen circumstances\, our webinar with Prof Jakub Tolar is now on Thursday 11th December at 2pm. \nIf you had already registered\, your place has been transferred. We apologise for any inconvenience this may cause. \nRegistration remains open to all.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \nImmune & cell therapy for RDEB SCC\nProf Jakub Tolar (University of Minnesota) is joining us to talk about his research into immune and cell therapy for recessive dystrophic EB (RDEB) associated squamous cell carcinoma (SCC). You can read more about this research project here.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Register your free place[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]When?  Thursday 11th December\, 2pm GMT \nWhere? Online – register now \nWho? This free webinar is open to all – EB patients and families\, researchers\, clinicians\, and anyone with an interest in EB. \n  \nPlease note that this a live event only – a recording won’t be shared after the event. \nHosted by Sharmila Collins\, founder of Cure EB\, this is a free event open to all\, but you must register. \nThere will be an opportunity to ask questions\, but you can also submit questions in advance here.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Meet the speaker” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Prof Jakub Tolar is the dean of the University of Minnesota Medical School and a Distinguished McKnight University Professor in the Department of Pediatrics\, Blood and Marrow Transplant & Cellular Therapy. He is also the vice president for Clinical Affairs at the University of Minnesota\, board chair for University of Minnesota Physicians and co-leader of M Health Fairview\, the joint clinical enterprise among the University of Minnesota Medical School\, University of Minnesota Physicians and Fairview Health Services. An internationally recognized physician and researcher\, Dr. Tolar is known for his care of patients with recessive dystrophic epidermolysis bullosa. His research is focused on developing cellular therapies for rare genetic disorders.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/researchthecure-dec25/
LOCATION:Online
CATEGORIES:Research Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2025/10/251120-Jakub-tolar-webinar.png
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