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X-WR-CALNAME:Cure EB
X-ORIGINAL-URL:https://cure-eb.org
X-WR-CALDESC:Events for Cure EB
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TZID:Europe/London
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DTSTART;TZID=Europe/London:20251005T090000
DTEND;TZID=Europe/London:20251005T130000
DTSTAMP:20260502T071932
CREATED:20250120T123235Z
LAST-MODIFIED:20250508T141408Z
UID:20328-1759654800-1759669200@cure-eb.org
SUMMARY:Butterfly Run 2025
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Our Butterfly Run is back on Sunday 5th October 2025 at Queen Elizabeth Olympic Park in London. \nBook now![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Please get in touch (contact@cure-eb.org) if you are interested in sponsoring the event or being one of our charity partners.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-run-2025/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Sports Events
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DTSTART;TZID=Europe/London:20251005T130000
DTEND;TZID=Europe/London:20251005T163000
DTSTAMP:20260502T071932
CREATED:20250120T123722Z
LAST-MODIFIED:20250930T084010Z
UID:20333-1759669200-1759681800@cure-eb.org
SUMMARY:Family Day 2025
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Cure EB Family Day is a free event for our wonderful EB community to come together\, have fun and catch up on the latest EB research news. \nIf you or a family member have EB\, then join us for lunch\, and then while the adults hear from the EB experts\, the children will be entertained with games and crafts. There will also be plenty of time for tea and cake so that families can catch up with old friends and make some new ones! \n  \nWhen? Sunday 5th October \nWhere? Timber Lodge\, Queen Elizabeth Olympic Park\, London[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Book your free tickets” border=”no” background_color=”#1D4289″ title_color=”#FFFFFF”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_raw_html css=””]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[/vc_raw_html][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]We know that London isn’t convenient for everyone\, so we have secured limited funding to help some with access and travel. If you live far away and would like to come\, please do get in touch early\, so as not to miss out.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Confirmed speakers” border=”no” background_color=”#1D4289″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Prof John McGrath  \nJohn is Professor of Molecular Dermatology and Head of the Genetic Skin Disease Unit at King’s College London\, and a Consultant based at Guy’s Hospital in London\, where he is Head of the St John’s Institute of Dermatology. He is an internationally renowned expert in EB\, and a past president of the European Society for Dermatological Research.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Dr Pablo López Balboa \nPablo is a Paediatrician with a special interest in Paediatric Dermatology. In 2021\, he joined the paediatric dermatology team at Great Ormond Street Hospital for Children as a senior clinical research fellow\, focusing on stem-cell therapy and drug repurposing in genodermatoses. His current work centres on rare skin diseases\, biologic therapies\, hair disorders\, and laser treatments.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Dr Rob Hynds \nRob is a biologist at University College London’s Great Ormond Street Institute of Child Health\, where he leads the EpiCENTR research group. His team studies how stem cells and gene therapies can be used to repair and regenerate airways\, with the goal of developing new treatments. He is co-leading a research project to explore a new therapy for airway problems in Junctional EB.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Dr Richard Williams \nRichard is CEO of Healome Therapeutics\, a spin-out company from the University of Birmingham driving the development of more effective\, safer\, and easier to use treatments for ocular surface conditions that can threaten vision. Interests in EB focus on ways of helping maintain functional vision and guide the healing of the surface of the eye while reducing the risk of scarring.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Sponsor” border=”no” background_color=”#1D4289″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][/vc_column][vc_column width=”1/3″][vc_single_image image=”19892″ img_size=”full” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” background_color=”#F2F2F2″][vc_column][vc_column_text css=””] \nButterfly Run 2025\nWhy not join us in the morning for our family friendly Butterfly Run? This accessible event is held at the same venue\, and we are encouraging as many people of all abilities to run\, walk\, wheel or whatever you can do to complete a 1k\, 5k or 10k race.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/family-day-2025/
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2025/08/Family-Day-2025-feature-image-900-x-450-px.png
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