BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Cure EB - ECPv6.15.14//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Cure EB
X-ORIGINAL-URL:https://cure-eb.org
X-WR-CALDESC:Events for Cure EB
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20231029T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20240331T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20241027T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20251026T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241203T114500
DTEND;TZID=Europe/London:20241203T150000
DTSTAMP:20260503T122026
CREATED:20241008T130844Z
LAST-MODIFIED:20241010T132252Z
UID:20048-1733226300-1733238000@cure-eb.org
SUMMARY:Butterfly Speaker Lunch with Mishal Husain and Hadley Freeman
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]To launch our Big Give Christmas Challenge week we invite you to our fabulous Butterfly Speaker Lunch at the elegant French restaurant\, Orrery\, in the heart of Marylebone on 3rd December. \nWe are thrilled to have Mishal Husain\, BBC Radio 4 Today programme presenter and Sunday Times Top Ten best-selling author of ‘Broken Threads’ and ‘The Skills’\, in conversation with Hadley Freeman\, best selling author of ‘House of Glass’ and ‘Good Girls’ and Sunday Times journalist. \nOn arrival\, you will be welcomed with champagne on the rooftop terrace\, before being treated to a sumptuous and delicious three course lunch\, after which we will have the pleasure of listening to Mishal and Hadley converse.[/vc_column_text][vc_gallery type=”image_grid” images=”20061\,20062\,20067\,20068\,20071\,20063\,20081\,20083″ css=”” column_number=”4″ grayscale=”no” images_space=”gallery_with_space”][vc_column_text css=””]We look forward to welcoming you at 11:45am on Tuesday 3rd December 2024. If you have any questions ahead of booking tickets\, please get in touch with us at events@cure-eb.org.[/vc_column_text][vc_raw_html css=””]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[/vc_raw_html][vc_column_text css=””]Please note: When purchasing a ticket\, your personal data will be collected in order to facilitate the management of\, and communications ahead of\, the event. Your email address and mobile number will not be used for further marketing purposes unless you have explicitly asked us to do so. Your postal address may be used for occasional future mailings from which you can opt out at any time\, just let us know on contact@cure-eb.org.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-speaker-lunch-2024/
LOCATION:Orrery\, 55 Marylebone High Street\, London\, W1U 5RB\, United Kingdom
CATEGORIES:Brunch Club,Speaker Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2024/10/Speaker-Lunch-header-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241209T130000
DTEND;TZID=Europe/London:20241209T140000
DTSTAMP:20260503T122026
CREATED:20241114T103722Z
LAST-MODIFIED:20241118T105314Z
UID:20122-1733749200-1733752800@cure-eb.org
SUMMARY:Family Forum - Losartan in RDEB with Prof Dimitra Kiritsi
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Prof Dimitra Kiritsi\, Aristotle University of Thessaloniki\, is joining our Family Forum online to talk about the recently published results of the REFLECT study. In this phase 1/2 clinical trial\, losartan was well tolerated by children with RDEB\, and the trial provided preliminary evidence of a reduction in disease burden.  \nJoin Sharmila and Kate as they chat with Dimitra to find out more about the trial and what this means for patients with RDEB. There will be plenty of time to ask questions\, so do join us for our last Family Forum event of 2024.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=”.vc_custom_1731927188995{padding-top: 35px !important;padding-right: 35px !important;padding-bottom: 35px !important;padding-left: 35px !important;background-color: #F0F0F0 !important;border-color: #F0F0F0 !important;}”]When? Monday 9th December\, 1pm (UK time) \nWhere? Online – you can join from anywhere in the world \nPlease note that this is a live event only – a recording won’t be shared after the event. \nThis event is open to all Family Forum members. \n\nIf you are already part of our Family Forum\, you will be emailed a joining link.\nIf you are not yet a member\, sign up here – it’s free to join.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Please note that Family Forum is a free\, informal group for EB patients and their families/carers. Visit our Family Forum page for more information.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/familyforum-dec24/
LOCATION:Online
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2024/11/Family-Forum-online-December-2024-900x450-1-2.png
END:VEVENT
END:VCALENDAR