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X-WR-CALDESC:Events for Cure EB
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20240912T123000
DTEND;TZID=Europe/London:20240912T133000
DTSTAMP:20260503T175723
CREATED:20240723T080648Z
LAST-MODIFIED:20241030T155541Z
UID:19703-1726144200-1726147800@cure-eb.org
SUMMARY:Research the Cure Webinar – September 2024
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Thank you to Chiesi for the provision of an arm’s length educational grant to support this webinar series.[/vc_column_text][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Novel therapeutic approach to cure severe dystrophic epidermolysis bullosa \nIn our second webinar of 2024\, Prof Katsuto Tamai\, Osaka University\, will be joining us to talk about his work with gene modified blister-fluid mesenchymal stromal cells for RDEB. \nThe webinar is free to join\, but you must register.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Hosted by Sharmila Collins\, founder of Cure EB\, this is a free event open to all\, but you must register. \nThere will be an opportunity to ask questions during the webinar\, but please also submit your questions in advance here.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space]Register your free place[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”About our speaker” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”19715″ css=”” qode_css_animation=””][/vc_column][vc_column width=”2/3″][vc_column_text css=””]Prof Katsuto Tamai is a Professor in the Department of Stem Cell Therapy Science at Osaka University\, and Director and Chief Scientific Officer of Stemrim\, a biotechnology company.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space]Research the Cure webinar registration[/vc_column][/vc_row]
URL:https://cure-eb.org/event/researchthecure-sep24/
CATEGORIES:Research Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2024/07/Research-the-Cure-Sep-24-webinar-news-research-events.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240929
DTEND;VALUE=DATE:20240930
DTSTAMP:20260503T175723
CREATED:20240207T130309Z
LAST-MODIFIED:20241007T131917Z
UID:19445-1727568000-1727654399@cure-eb.org
SUMMARY:Butterfly Run 2024
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \n\n\n\n\n\n\n\nIt’s time to fly!\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nCure EB’s Butterfly Run is a celebration of inclusivity taking place at the Queen Elizabeth Olympic Park in London on Sunday 29th September 2024 (previously advertised as Sunday 22nd). \nWe are encouraging as many people of all abilities to run\, walk\, wheel\, or whatever you can do to complete a 1k\, 5k or 10k race. \n\n\n\n\n\n\n\n[/vc_column_text][vc_empty_space][vc_column_text css=””]Advanced booking for this event has now closed. However\, you can book tickets on the day!  \nOn the day participants just need to arrive at 9.30am to pay and register.  \nTickets cost between £10 and £25. [/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space]\n	\n		\n	\n	\n		\n	\n	\n		\n			\n				\n					\n				\n			\n		\n		\n			\n				\n					 We had a blast! Such a lovely event. Great to catch up and put our feet to good use!  \n				\n				\n					 2023 Butterfly Run participant   \n				\n			\n		\n	\n[vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” anchor=”Book_Run24″][vc_column][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” anchor=”Book_Run24″][vc_column][vc_empty_space][vc_text_separator title=”Corporate Sponsors” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][/vc_column][vc_column width=”1/3″][vc_single_image image=”19892″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/2″][vc_single_image image=”19896″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/2″][vc_single_image image=”19893″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” anchor=”Book_Run24″][vc_column][vc_empty_space][vc_text_separator title=”Charity Partners” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/2″][vc_single_image image=”19897″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/2″][vc_single_image image=”19894″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” background_color=”#f6f6f6″][vc_column][vc_column_text css=””] \nCure EB Family Day 2024\nIf you or a family member have EB\, why not stay for our Family Day – places are free\, but you need to register.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-run-2024/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Family Events,Sports Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2024/02/Butterfly-Run-2024-feature-image-900x450-NEW-DATE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20240929T130000
DTEND;TZID=Europe/London:20240929T160000
DTSTAMP:20260503T175723
CREATED:20240501T111647Z
LAST-MODIFIED:20240926T140717Z
UID:19572-1727614800-1727625600@cure-eb.org
SUMMARY:Cure EB Family Day 2024
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Tickets are no longer available to pre-book. Please email contact@cure-eb.org to enquire about additional spaces.[/vc_column_text][vc_empty_space][vc_column_text css=””]If you or a family member have EB\, then join us for our Family Day Sunday 29th September at the Queen Elizabeth Olympic Park in London! \nCure EB Family Day is a free event for EB families to connect\, have fun\, and catch up on the latest EB research news. \nJoin us for lunch\, and then while the adults hear from EB experts\, the children will be entertained with games and crafts. There will also be plenty of time for tea and cake so that families can catch up with old friends and make some new ones![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]We know that London isn’t convenient for everyone\, so we have secured limited funding to help some with access and travel. If you live far away and would like to come please do get in touch early\, so as not to miss out.[/vc_column_text][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Confirmed speakers” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]We’re delighted to have the following speakers joining us at Family Day:[/vc_column_text][vc_empty_space][vc_column_text css=””]Prof John McGrath \nProfessor of Molecular Dermatology and head of the Genetic Skin Disease Group\, St John’s Institute of Dermatology\, King’s College London.[/vc_column_text][vc_empty_space][vc_empty_space][vc_column_text css=””]Dr Joanna Jacków \nLecturer in Molecular Dermatology & Therapeutics\, St John’s Institute of Dermatology\, King’s College London.[/vc_column_text][vc_empty_space][vc_empty_space][vc_column_text css=””]Dr Anna Martinez \nPaediatric dermatology consultant and National Epidermolysis Bullosa Service Lead at Great Ormond Street Hospital\, London.[/vc_column_text][vc_empty_space][vc_empty_space][vc_column_text css=””]Meena Arora \nVP Global Medical Affairs and Research & Development at Traw Pharma\, where she is working on drug development in RDEB associated squamous cell carcinoma.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” anchor=”Book_FD24″][vc_column][vc_empty_space]
URL:https://cure-eb.org/event/family-day-2024/
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2024/05/Family-Day-2024-feature-image-900x450-NEW-DATE.png
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