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UID:19672-1720555200-1720558800@cure-eb.org
SUMMARY:Family Forum - Hand Hackathon
DESCRIPTION:How do you dress your hands to try to minimise scarring\, contraction and damage? \nIf you have EB\, or care for someone who does\, join us for our Hand Hackathon where we can all share our knowledge of how we manage hands. \nPlease note that this is not medical advice\, but a forum to share what has and hasn’t worked for you/your family member. \n  \nWhen? Tuesday 9th July\, 8pm (UK time) \nWhere? Online – you can join from anywhere in the world. \nThis event is open to all Family Forum members. \n\nIf you are already part of our Family Forum\, you will be emailed a joining link.\nIf you are not yet a member\, sign up here – it’s free to join.\n\nPlease note that Family Forum is an informal group for EB patients and their families/carers. Visit our Family Forum page for more information.
URL:https://cure-eb.org/event/family-forum-hand-hackathon/
LOCATION:Online
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2024/06/FF-Hand-Hackathon-July-2024-900x450-1.png
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