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DTSTART;TZID=Europe/London:20231109T131500
DTEND;TZID=Europe/London:20231109T140000
DTSTAMP:20260503T223800
CREATED:20231019T111356Z
LAST-MODIFIED:20231024T141003Z
UID:19150-1699535700-1699538400@cure-eb.org
SUMMARY:Research the Cure webinar
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text] \nResearch the Cure – EB-associated Squamous Cell Carcinoma\nIn our final Research the Cure webinar of the year\, Prof. Andrew South\, Thomas Jefferson University\, is joining us to talk about EB-associated squamous cell carcinoma (SCC).[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Register now for the Research the Cure Webinar[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]Not all EB patients will get cancer. However\, in patients with Recessive Dystrophic EB it is the leading cause of premature death. And patients with Dominant Dystrophic EB\, generalized Junctional EB and Kindler Syndrome are at an increased risk of SCC. \nTherefore\, while we search for a cure\, we also need to search for treatments to prevent and slow the progression of EB-associated SCC. \nFor more than a decade\, the South lab has been researching EB-associated SCC and we are delighted to have Andy joining us for our November webinar. \nThere will be an opportunity to ask questions during the webinar\, but please also submit questions in advance here. \nOur research webinars are free to join and open to all\, but you must register.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Guest speaker” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”17978″ qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text]Prof Andrew South is Associate Professor in the Department of Dermatology & Cutaneous Biology\, Thomas Jefferson University\, Philadelphia. He is a molecular biologist studying squamous cell carcinoma\, particularly those arising in individuals with genetic predisposition to progressive disease.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/research-the-cure-nov23/
LOCATION:Online
CATEGORIES:Research Events
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DTSTART;VALUE=DATE:20231128
DTEND;VALUE=DATE:20231129
DTSTAMP:20260503T223800
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LAST-MODIFIED:20231030T121412Z
UID:19083-1701129600-1701215999@cure-eb.org
SUMMARY:Butterfly Brunch with Hadley Freeman & Amelia Gentleman
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]Our Butterfly Brunch is returning for the first time since the pandemic\, and we would love for you to join us in London for another stunning speaker event.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=”.vc_custom_1697634638650{padding-top: 10px !important;padding-right: 10px !important;padding-bottom: 10px !important;padding-left: 10px !important;background-color: #f7f7f7 !important;}”] \nAt Orrery Restaurant\, in the heart of London’s Marylebone \n55 Marylebone High Street\, W1U 5RB \n11.45am to 3pm on Tuesday 28th November 2023 \n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]Enjoy a glass of fizz on the rooftop terrace\, followed by a three-course lunch and a fascinating conversation with Hadley and Amelia. They will also be signing copies of their books – ‘Good Girls: A story and study of anorexia’ and ‘The Windrush Betrayal: Exposing the Hostile Environment‘. \nA wonderful opportunity to ask our speakers any burning questions\, learn more about how you can double your impact with The Big Give Christmas challenge and stand to receive a generous raffle prize.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”19208″ img_size=”” qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text]Hadley Freeman is a staff writer for The Sunday Times and previously spent more than two decades at The Guardian. Her most recent books include ‘House of Glass’ and ‘Good Girls’.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”19209″ img_size=”” qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text]Amelia Gentleman\, is a reporter for the Guardian. She was named journalist of the year in 2019 for her investigations into the Windrush scandal\, and also won the Paul Foot award and an Amnesty prize for the reporting. Her book ‘The Windrush Betrayal\, Exposing the Hostile Environment’ was shortlisted for the 2020 Orwell book prize. Amelia previously reported from Paris and Moscow for the Guardian and from Delhi for the New York Times.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”BOOK YOUR TICKETS” border=”no”][vc_raw_html]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[/vc_raw_html][vc_column_text css=”.vc_custom_1698234640259{padding-top: 20px !important;}”]Please note: When purchasing a ticket\, your personal data will be collected in order to facilitate the management of\, and communications ahead of\, the event. Your email address and mobile number will not be used for further marketing purposes unless you have explicitly asked us to do so. Your postal address may be used for occasional future mailings from which you can opt out at any time\, just let us know on contact@cure-eb.org.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-brunch-2023/
CATEGORIES:Speaker Events
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