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PRODID:-//Cure EB - ECPv6.15.14//NONSGML v1.0//EN
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X-WR-CALNAME:Cure EB
X-ORIGINAL-URL:https://cure-eb.org
X-WR-CALDESC:Events for Cure EB
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BEGIN:VTIMEZONE
TZID:UTC
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TZOFFSETFROM:+0000
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TZNAME:UTC
DTSTART:20210101T000000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220925
DTEND;VALUE=DATE:20220926
DTSTAMP:20260505T230906
CREATED:20220729T095349Z
LAST-MODIFIED:20220908T125029Z
UID:15985-1664064000-1664150399@cure-eb.org
SUMMARY:Cure EB Butterfly Run
DESCRIPTION:The Butterfly Run is back!\nAfter a break due to the pandemic\, we are delighted to invite you back to our Butterfly Run at the Olympic Park in London. It’s ‘Time to Fly!’ \nCure EB’s Butterfly Run is a celebration of inclusivity taking place on Sunday 25th September 2022.  We are encouraging as many people of all abilities to run\, walk\, wheel\, or whatever you can do to complete a 1k\, 5k or 10k race. \nAll entrants will receive a Butterfly Run race t-shirt\, race number\, time chip and finisher medal. \nHelp to raise vital funds to cure EB by making a donation or raising sponsorship. \nEB families\, find out more about our Cure EB Family Day. \n \nWhy Butterfly Run?\nCure EB funds medical research to find a cure for all types of epidermolysis bullosa (EB)\, a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as ‘fragile as a butterfly’s wings’. \nWhat we want most is for children and adults to fly free from the pain of EB and make the blisters and wounds stop. \nVisit our research pages to find out more about the research we fund.
URL:https://cure-eb.org/event/cure-eb-butterfly-run/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Butterfly-Run-2022-900x450-1.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220925
DTEND;VALUE=DATE:20220926
DTSTAMP:20260505T230906
CREATED:20220729T095610Z
LAST-MODIFIED:20220905T095449Z
UID:15989-1664064000-1664150399@cure-eb.org
SUMMARY:Cure EB Family Day
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]Our Cure EB Family Day is a chance for EB families to connect with each other\, while catching up on the latest EB research news. After a hiatus of three years due to the pandemic\, we are delighted to have an opportunity to get our community back together. \nWhen? Sunday 25th September 2022\, 1pm – 5pm \nWhere? Timber Lodge\, Olympic Park\, London \nWhat? Lunch\, followed by an afternoon finding out about the latest EB research and connecting with other EB families\, while our children are entertained by the wonderful Sharky & George. \nIf you have any questions please email Kate\, our community liaison officer. \n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Book Now[/vc_column][/vc_row]
URL:https://cure-eb.org/event/cure-eb-family-day/
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