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X-WR-CALDESC:Events for Cure EB
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230227T123000
DTEND;TZID=Europe/London:20230227T131500
DTSTAMP:20260502T122528
CREATED:20230215T135135Z
LAST-MODIFIED:20230223T133604Z
UID:18422-1677501000-1677503700@cure-eb.org
SUMMARY:Research the Cure Webinar
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]In the lead-up to Rare Disease Day\, join us on Monday 27th February for the first of our lunchtime Research Webinars. \nProf John McGrath will be joining us to talk about the current EB research landscape. \nThe webinar is free to join – click here to register your place.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”18070″ qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text]Prof John McGrath is Professor of Molecular Dermatology and Head of the Genetic Skin Disease Unit at King’s College London\, and a Consultant based at Guy’s Hospital in London\, where he is Head of the St John’s Institute of Dermatology. He is an internationally renowned expert in EB.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/research-the-cure-webinar-feb23/
LOCATION:Online
CATEGORIES:Research Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2023/02/Research-the-Cure-Research-Webinar-Feb-23-website-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220925
DTEND;VALUE=DATE:20220926
DTSTAMP:20260502T122528
CREATED:20220729T095610Z
LAST-MODIFIED:20220905T095449Z
UID:15989-1664064000-1664150399@cure-eb.org
SUMMARY:Cure EB Family Day
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]Our Cure EB Family Day is a chance for EB families to connect with each other\, while catching up on the latest EB research news. After a hiatus of three years due to the pandemic\, we are delighted to have an opportunity to get our community back together. \nWhen? Sunday 25th September 2022\, 1pm – 5pm \nWhere? Timber Lodge\, Olympic Park\, London \nWhat? Lunch\, followed by an afternoon finding out about the latest EB research and connecting with other EB families\, while our children are entertained by the wonderful Sharky & George. \nIf you have any questions please email Kate\, our community liaison officer. \n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Book Now[/vc_column][/vc_row]
URL:https://cure-eb.org/event/cure-eb-family-day/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/900x450.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220925
DTEND;VALUE=DATE:20220926
DTSTAMP:20260502T122528
CREATED:20220729T095349Z
LAST-MODIFIED:20220908T125029Z
UID:15985-1664064000-1664150399@cure-eb.org
SUMMARY:Cure EB Butterfly Run
DESCRIPTION:The Butterfly Run is back!\nAfter a break due to the pandemic\, we are delighted to invite you back to our Butterfly Run at the Olympic Park in London. It’s ‘Time to Fly!’ \nCure EB’s Butterfly Run is a celebration of inclusivity taking place on Sunday 25th September 2022.  We are encouraging as many people of all abilities to run\, walk\, wheel\, or whatever you can do to complete a 1k\, 5k or 10k race. \nAll entrants will receive a Butterfly Run race t-shirt\, race number\, time chip and finisher medal. \nHelp to raise vital funds to cure EB by making a donation or raising sponsorship. \nEB families\, find out more about our Cure EB Family Day. \n \nWhy Butterfly Run?\nCure EB funds medical research to find a cure for all types of epidermolysis bullosa (EB)\, a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as ‘Butterfly Children’ as their skin is said to be as ‘fragile as a butterfly’s wings’. \nWhat we want most is for children and adults to fly free from the pain of EB and make the blisters and wounds stop. \nVisit our research pages to find out more about the research we fund.
URL:https://cure-eb.org/event/cure-eb-butterfly-run/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Butterfly-Run-2022-900x450-1.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220519
DTEND;VALUE=DATE:20220520
DTSTAMP:20260502T122528
CREATED:20220729T103115Z
LAST-MODIFIED:20221124T155335Z
UID:16026-1652918400-1653004799@cure-eb.org
SUMMARY:Silver Butterfly Dinner 2022
DESCRIPTION:
URL:https://cure-eb.org/event/silver-butterfly-dinner-2022/
CATEGORIES:Butterfly Dinner,Gala Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Silver-Butterfly-Dinner-2022-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210923
DTEND;VALUE=DATE:20210924
DTSTAMP:20260502T122528
CREATED:20220729T103242Z
LAST-MODIFIED:20221124T155534Z
UID:16031-1632355200-1632441599@cure-eb.org
SUMMARY:Walk on the Wild Side at London Zoo
DESCRIPTION:
URL:https://cure-eb.org/event/wild-side-london-zoo-2021/
CATEGORIES:Gala Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/London-Zoo-23-September-2021-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200911
DTEND;VALUE=DATE:20200912
DTSTAMP:20260502T122528
CREATED:20220729T103312Z
LAST-MODIFIED:20220908T124637Z
UID:16033-1599782400-1599868799@cure-eb.org
SUMMARY:BGC Virtual Charity Day – 11 September 2020
DESCRIPTION:
URL:https://cure-eb.org/event/bgc-virtual-charity-day-11-september-2020/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/BGC-Virtual-Charity-Day-11-September-2020-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200121T070000
DTEND;TZID=UTC:20200121T235900
DTSTAMP:20260502T122528
CREATED:20220729T103350Z
LAST-MODIFIED:20221124T154537Z
UID:16035-1579590000-1579651140@cure-eb.org
SUMMARY:House of Lords Dinner 2020
DESCRIPTION:
URL:https://cure-eb.org/event/house-of-lords-dinner-21-january-2020/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200119
DTEND;VALUE=DATE:20200124
DTSTAMP:20260502T122528
CREATED:20220729T103443Z
LAST-MODIFIED:20221010T114225Z
UID:16037-1579392000-1579823999@cure-eb.org
SUMMARY:EB World Congress – 19-23 January 2020
DESCRIPTION:
URL:https://cure-eb.org/event/eb-world-congress-19-23-january-2020/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/EB-World-Congress-2020-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190922
DTEND;VALUE=DATE:20190923
DTSTAMP:20260502T122528
CREATED:20220729T103533Z
LAST-MODIFIED:20220908T124940Z
UID:16039-1569110400-1569196799@cure-eb.org
SUMMARY:Cure EB Butterfly Run at Queen Elizabeth Park
DESCRIPTION:
URL:https://cure-eb.org/event/cure-eb-butterfly-run-at-queen-elizabeth-park-22nd-september-2019/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Butterfly-Run-2019-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190516
DTEND;VALUE=DATE:20190517
DTSTAMP:20260502T122528
CREATED:20220729T103658Z
LAST-MODIFIED:20220908T122544Z
UID:16042-1557964800-1558051199@cure-eb.org
SUMMARY:Silver Butterfly Dinner at the Royal Institute of British Architects
DESCRIPTION:
URL:https://cure-eb.org/event/silver-butterfly-dinner-at-the-royal-institute-of-british-architects/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Silver-Butterfly-Dinner-2011-House-of-Lords-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181129
DTEND;VALUE=DATE:20181130
DTSTAMP:20260502T122528
CREATED:20220729T103727Z
LAST-MODIFIED:20220729T103727Z
UID:16044-1543449600-1543535999@cure-eb.org
SUMMARY:Butterfly Brunch Club in Conversation with Mishal Husain and Hadley Freeman
DESCRIPTION:
URL:https://cure-eb.org/event/butterfly-brunch-club-in-conversation-with-mishal-husain-and-hadley-freeman/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180930
DTEND;VALUE=DATE:20181001
DTSTAMP:20260502T122528
CREATED:20220729T103755Z
LAST-MODIFIED:20220908T123744Z
UID:16046-1538265600-1538351999@cure-eb.org
SUMMARY:Cure EB Butterfly Run
DESCRIPTION:
URL:https://cure-eb.org/event/cure-eb-butterfly-run-2/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Butterfly-Run-2018-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170903
DTEND;VALUE=DATE:20170904
DTSTAMP:20260502T122528
CREATED:20220729T105848Z
LAST-MODIFIED:20221010T123304Z
UID:16062-1504396800-1504483199@cure-eb.org
SUMMARY:Parallel London 2017
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_gallery type=”image_grid” images=”16064\,16065\,16066\,16067\,16068\,16069″ img_size=”full” onclick=”” column_number=”5″ grayscale=”no” images_space=”gallery_without_space”][/vc_column][/vc_row]
URL:https://cure-eb.org/event/parallel-london-2017/
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2022/07/PL-Linus-and-gabrielius-150x150-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170729
DTEND;VALUE=DATE:20220730
DTSTAMP:20260502T122528
CREATED:20220729T104746Z
LAST-MODIFIED:20220729T131858Z
UID:16048-1501286400-1659139199@cure-eb.org
SUMMARY:GFI Charity Day 2017
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_gallery type=”image_grid” images=”16189\,16187\,16186″ img_size=”full” column_number=”4″ grayscale=”no” images_space=”gallery_without_space”][/vc_column][/vc_row]
URL:https://cure-eb.org/event/gfi-charity-day-2017/
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2022/07/GFI-Damian.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170729
DTEND;VALUE=DATE:20170730
DTSTAMP:20260502T122528
CREATED:20220729T110902Z
LAST-MODIFIED:20220908T123204Z
UID:16088-1501286400-1501372799@cure-eb.org
SUMMARY:SRF Butterfly Brunch Club 2017
DESCRIPTION:
URL:https://cure-eb.org/event/srf-butterfly-brunch-club-2017/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Danielle-de-Niese-2014-St-Johns-Smith-Square-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170729
DTEND;VALUE=DATE:20170730
DTSTAMP:20260502T122528
CREATED:20220729T110730Z
LAST-MODIFIED:20220729T110742Z
UID:16082-1501286400-1501372799@cure-eb.org
SUMMARY:Family Day 2017
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_gallery type=”image_grid” images=”16083\,16084\,16085\,16086″ img_size=”full” onclick=”” column_number=”4″ grayscale=”no” images_space=”gallery_without_space”][/vc_column][/vc_row]
URL:https://cure-eb.org/event/family-day-2017/
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2022/07/FamDay-Mason-150x150-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170529
DTEND;VALUE=DATE:20220730
DTSTAMP:20260502T122528
CREATED:20220729T105956Z
LAST-MODIFIED:20220908T123635Z
UID:16071-1496016000-1659139199@cure-eb.org
SUMMARY:Vitality 10k
DESCRIPTION:
URL:https://cure-eb.org/event/vitality-10k/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Vitality-10k-Run-29-May-2017-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170523
DTEND;VALUE=DATE:20220730
DTSTAMP:20260502T122528
CREATED:20220729T110227Z
LAST-MODIFIED:20220908T123858Z
UID:16079-1495497600-1659139199@cure-eb.org
SUMMARY:Virgin London Marathon
DESCRIPTION:Sohana with her dad James after he finished the 2017 London Marathon
URL:https://cure-eb.org/event/virgin-london-marathon/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Virgin-London-Marathon-19-April-2019-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170518
DTEND;VALUE=DATE:20220730
DTSTAMP:20260502T122528
CREATED:20220729T110142Z
LAST-MODIFIED:20220729T110142Z
UID:16074-1495065600-1659139199@cure-eb.org
SUMMARY:RIBA – Silver Butterfly Dinner
DESCRIPTION:
URL:https://cure-eb.org/event/riba-silver-butterfly-dinner/
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2022/07/18768392_1425640437474445_8035239128576634743_o-300x229-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20161223
DTEND;VALUE=DATE:20161224
DTSTAMP:20260502T122528
CREATED:20220729T111520Z
LAST-MODIFIED:20220802T103723Z
UID:16105-1482451200-1482537599@cure-eb.org
SUMMARY:Sohana wins a Prime Minister’s Points of Light award
DESCRIPTION:Read full article here
URL:https://cure-eb.org/event/sohana-wins-a-prime-ministers-points-of-light-award/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Sohana-wins-a-Prime-Ministers-Points-of-Light-award.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20161207
DTEND;VALUE=DATE:20161208
DTSTAMP:20260502T122528
CREATED:20220729T111053Z
LAST-MODIFIED:20220729T111053Z
UID:16092-1481068800-1481155199@cure-eb.org
SUMMARY:Cadogan Hall Concert
DESCRIPTION:
URL:https://cure-eb.org/event/cadogan-hall-concert/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/SRF-concert-flyer-1-724x1024-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20160729
DTEND;VALUE=DATE:20220730
DTSTAMP:20260502T122528
CREATED:20220729T111150Z
LAST-MODIFIED:20220729T111150Z
UID:16097-1469750400-1659139199@cure-eb.org
SUMMARY:Tom’s cycle round the World for SRF
DESCRIPTION:
URL:https://cure-eb.org/event/toms-cycle-round-the-world-for-srf/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20160512
DTEND;VALUE=DATE:20160513
DTSTAMP:20260502T122528
CREATED:20220729T111131Z
LAST-MODIFIED:20220729T111131Z
UID:16095-1463011200-1463097599@cure-eb.org
SUMMARY:Baroque Concert Fundraiser
DESCRIPTION:
URL:https://cure-eb.org/event/baroque-concert-fundraiser/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20160511
DTEND;VALUE=DATE:20160512
DTSTAMP:20260502T122528
CREATED:20220729T111217Z
LAST-MODIFIED:20220729T111217Z
UID:16099-1462924800-1463011199@cure-eb.org
SUMMARY:RIBA -Dinner
DESCRIPTION:
URL:https://cure-eb.org/event/riba-dinner/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150729
DTEND;VALUE=DATE:20220730
DTSTAMP:20260502T122528
CREATED:20220729T111901Z
LAST-MODIFIED:20220729T111901Z
UID:16112-1438128000-1659139199@cure-eb.org
SUMMARY:Channel 5 News
DESCRIPTION:
URL:https://cure-eb.org/event/channel-5-news/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Cure-EB-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150715
DTEND;VALUE=DATE:20150716
DTSTAMP:20260502T122528
CREATED:20220729T111555Z
LAST-MODIFIED:20220729T111555Z
UID:16108-1436918400-1437004799@cure-eb.org
SUMMARY:Sohana wins a Pride of Britain award
DESCRIPTION:
URL:https://cure-eb.org/event/sohana-wins-a-pride-of-britain-award/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20150415T080000
DTEND;TZID=UTC:20150715T170000
DTSTAMP:20260502T122528
CREATED:20220729T111948Z
LAST-MODIFIED:20220729T111948Z
UID:16117-1429084800-1436979600@cure-eb.org
SUMMARY:Virgin London Marathon
DESCRIPTION:
URL:https://cure-eb.org/event/virgin-london-marathon-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150415
DTEND;VALUE=DATE:20150416
DTSTAMP:20260502T122528
CREATED:20220729T111243Z
LAST-MODIFIED:20220729T111243Z
UID:16101-1429056000-1429142399@cure-eb.org
SUMMARY:Virgin London Marathon
DESCRIPTION:
URL:https://cure-eb.org/event/virgin-london-marathon-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150121
DTEND;VALUE=DATE:20150122
DTSTAMP:20260502T122528
CREATED:20220729T111305Z
LAST-MODIFIED:20220908T123336Z
UID:16103-1421798400-1421884799@cure-eb.org
SUMMARY:SRF Update – Christies
DESCRIPTION:
URL:https://cure-eb.org/event/srf-update-christies/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/SRF-Drinks-at-Christies-20-January-2015-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20140624
DTEND;VALUE=DATE:20140625
DTSTAMP:20260502T122528
CREATED:20220729T111924Z
LAST-MODIFIED:20220908T123417Z
UID:16115-1403568000-1403654399@cure-eb.org
SUMMARY:Danielle de Niese In Concert at St John’s Smith Square
DESCRIPTION:
URL:https://cure-eb.org/event/danielle-de-niese-in-concert-at-st-johns-smith-square/
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2022/07/Danielle-de-Niese-2014-St-Johns-Smith-Square-900x450-1.png
END:VEVENT
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