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X-WR-CALDESC:Events for Cure EB
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260514
DTEND;VALUE=DATE:20260515
DTSTAMP:20260503T163401
CREATED:20260126T162700Z
LAST-MODIFIED:20260408T131410Z
UID:21410-1778716800-1778803199@cure-eb.org
SUMMARY:Silver Butterfly Dinner 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=”.vc_custom_1775653946212{padding-bottom: 15px !important;}”]Join us on Thursday 14th May for a night of champagne\, dinner\, entertainment and auctions in the stunning surroundings of One Marylebone. \nTickets can be purchased individually or as a table of ten.[/vc_column_text]Book Tickets[/vc_column][/vc_row]
URL:https://cure-eb.org/event/silver-butterfly-dinner-2026/
CATEGORIES:Butterfly Dinner,Gala Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/01/2026-Dinner-900x450-Website-featured-image.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260604T130000
DTEND;TZID=Europe/London:20260604T140000
DTSTAMP:20260503T163401
CREATED:20260429T101443Z
LAST-MODIFIED:20260429T115206Z
UID:21539-1780578000-1780581600@cure-eb.org
SUMMARY:Research the Cure webinar - EBSkinEdit with Prof Fernando Larcher
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Gene edited skin in RDEB \nJoin Sharmila Collins as she talks to Prof Fernando Larcher about EBSkinEdit\, a gene-edited skin for RDEB. \nThis webinar is free to join and open to all with an interest in EB. \nThere will be an opportunity to ask questions\, but you can also submit questions in advance here.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Register now[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]When? Thursday 4th June 2026\, 1pm \nWhere? Online\, join from wherever you are \nHow? Register online to book your free place.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”21546″ css=”” qode_css_animation=””][/vc_column][vc_column width=”2/3″][vc_column_text css=””]Prof Fernando Larcher is a Principal Investigator in the Epithelial Biomedicine Division at the Biomedical Innovation Department of the public research institute CIEMAT and Associate professor of Biochemistry at the Department of Bioengineering of University Carlos III of Madrid. His research focuses on various aspects of skin regenerative medicine\, including cell and gene therapy for rare skin diseases.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”20828″ css=”” qode_css_animation=””][/vc_column][vc_column width=”2/3″][vc_column_text css=””]Sharmila Collins is founder and trustee of Cure EB. Her oldest daughter\, Sohana\, has RDEB. When Sohana was born in 2002\, there was little prospect of an effective treatment let alone cure. Sharmila and her husband set up Cure EB (formerly the Sohana Research Fund) in 2011 as charity dedicated to funding researcher into effective treatments and a cure for EB.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]Register now to join this free webinar[/vc_column][/vc_row]
URL:https://cure-eb.org/event/rtc-ebskinedit/
LOCATION:Online
CATEGORIES:Research Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/04/260604-Fernando-Larcher-EBSkinEdit-RTC-webinar-feature-image.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260628
DTEND;VALUE=DATE:20260629
DTSTAMP:20260503T163401
CREATED:20260423T112723Z
LAST-MODIFIED:20260423T112841Z
UID:21534-1782604800-1782691199@cure-eb.org
SUMMARY:Brave Wings Festival
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Save the Date for our Brave Wings Festival.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/brave-wings-festival-2026/
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/04/2026-Brave-Wings-900x450-Website-events-news-research-featured-image.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261004T093000
DTEND;TZID=Europe/London:20261004T123000
DTSTAMP:20260503T163401
CREATED:20260106T121127Z
LAST-MODIFIED:20260319T152453Z
UID:21329-1791106200-1791117000@cure-eb.org
SUMMARY:Butterfly Run 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]On Sunday 4th October\, we’ll be back at the Queen Elizabeth Olympic Park in London\, for our fun\, friendly and inclusive Butterfly Run! \nOur event has something for everyone – we encourage as many people of all abilities to run\, walk\, wheel\, or whatever they can do to complete a 1k\, 5k or 10k race. \nThe 10k race is open to anyone age 13 and over; the 5k and 1k are open to all ages. All entrants will receive a Butterfly Run race t-shirt\, race number\, time chip\, and finisher medal. \nBook now![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_gallery type=”image_grid” images=”21335\,21128\,21110\,21336\,21338\,21337″ css=”” column_number=”6″ grayscale=”no” images_space=”gallery_with_space”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal” color=”#E7BD20″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \nCan we partner with you?\nYou sure can! Please email us at events@cure-eb.org if you are interested in sponsoring the event or being one of our charity partners.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-run-2026/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/01/Butterfly-Run-2026-900-x-450-px-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261004T130000
DTEND;TZID=Europe/London:20261004T163000
DTSTAMP:20260503T163401
CREATED:20260106T122621Z
LAST-MODIFIED:20260106T122621Z
UID:21344-1791118800-1791131400@cure-eb.org
SUMMARY:EB Family Day 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Save the date for our EB Family Day on Sunday 4th October 2026! \nIf you or a family member have EB\, then join us at the Queen Elizabeth Olympic Park for lunch and hear from EB experts\, while the children are entertained with games and crafts. \nOur EB Family Day is a free event for our wonderful EB community to come together\, have fun and catch up on the latest EB research news. \nMore details and how to book coming soon![/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/eb-family-day-2026/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/01/Family-Day-2026-save-the-date.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270425
DTEND;VALUE=DATE:20270426
DTSTAMP:20260503T163401
CREATED:20260212T153407Z
LAST-MODIFIED:20260212T154754Z
UID:21465-1808611200-1808697599@cure-eb.org
SUMMARY:London Marathon 2027
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text] \n\n\n\n\n\n\n\nThe TCS London Marathon is an incredible experience! Taking place on Sunday 25 April 2027 \, the route takes in many of London’s best landmarks including Buckingham Palace\, the Cutty Sark\, Tower Bridge and Canary Wharf. \nWith a charity place from Cure EB you could join around 40\,000 other runners attempting the 26.2 mile distance\, cheered on by the hundreds of thousands of spectators lining the streets\, while accelerating research to end the pain of EB. \n\n\n\n\n\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”20432″ img_size=”” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][vc_column_text]Charity places come with a minimum fundraising target. \nIf you would be interested in running for Cure EB in 2027\, do contact us for more information.[/vc_column_text][/vc_column][vc_column width=”1/3″][vc_single_image image=”20433″ img_size=”” css=”” qode_css_animation=””][/vc_column][/vc_row]
URL:https://cure-eb.org/event/london-marathon-2027/
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2025/02/London-Marathon-Featured-Image-900x450-1.jpg
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