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X-WR-CALDESC:Events for Cure EB
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261004T093000
DTEND;TZID=Europe/London:20261004T123000
DTSTAMP:20260626T062430
CREATED:20260106T121127Z
LAST-MODIFIED:20260601T143115Z
UID:21329-1791106200-1791117000@cure-eb.org
SUMMARY:Butterfly Run 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]On Sunday 4th October\, we’ll be back at the Queen Elizabeth Olympic Park in London\, for our fun\, friendly and inclusive Butterfly Run! \nOur event has something for everyone – we encourage as many people of all abilities to run\, walk\, wheel\, or whatever they can do to complete a 1k\, 5k or 10k race. \nThe 10k race is open to anyone age 13 and over; the 5k and 1k are open to all ages. All entrants will receive a Butterfly Run race t-shirt\, race number\, time chip\, and finisher medal. \nBook now![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_gallery type=”image_grid” images=”21335\,21128\,21110\,21336\,21338\,21337″ css=”” column_number=”6″ grayscale=”no” images_space=”gallery_with_space”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Charity Partners” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”21648″ alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][vc_single_image image=”21650″ alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][vc_single_image image=”21647″ alignment=”center” css=”” qode_css_animation=””][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”21649″ alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][/vc_column][vc_column width=”1/3″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal” color=”#E7BD20″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \nCan we partner with you?\nYou sure can! Please email us at events@cure-eb.org if you are interested in sponsoring the event or being one of our charity partners.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-run-2026/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/01/Butterfly-Run-2026-900-x-450-px-1.png
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DTSTART;TZID=Europe/London:20261004T130000
DTEND;TZID=Europe/London:20261004T163000
DTSTAMP:20260626T062430
CREATED:20260106T122621Z
LAST-MODIFIED:20260603T132714Z
UID:21344-1791118800-1791131400@cure-eb.org
SUMMARY:EB Family Day 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]BOOK NOW[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \nEB Family Day\nIf you or a family member have EB\, then join us at the Queen Elizabeth Olympic Park on Sunday 4th October! \nJoin us for lunch and then\, while the adults hear from the EB experts\, the children will be entertained with games and crafts. There will be plenty of time to ask questions\, as well as for tea and cake so that families can catch up with old friends and make some new ones![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Date: Sunday 4th October \nTime: 1.00pm – 4.30pm \nLocation: Timber Lodge Cafe\, Queen Elizabeth Olympic Park\, Honor Lea Avenue\, E20 1DY \nOur EB Family Day is a free event for our wonderful EB community to come together\, have fun and catch up on the latest EB research news. It’s always a lot of fun and we would love to see you there! \n [/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” el_id=”TTwidget” z_index=””][vc_column][vc_text_separator title=”Register your place” border=”no”][vc_empty_space][vc_column_text css=””]\n      \n        \n      \n    [/vc_column_text][vc_column_text css=””]Please note: When booking a ticket\, your personal data will be collected in order to facilitate the management of\, and communications ahead of\, the event. Your email address and mobile number will not be used for further marketing purposes unless you have explicitly asked us to do so. Your postal address may be used for occasional future mailings from which you can opt out at any time\, just let us know on contact@cure-eb.org. For more information see our Privacy Policy. [/vc_column_text][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]You might also want to join us for our Butterfly Run – an inclusive\, family-friendly\, fun event – held at the same location in the morning.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/eb-family-day-2026/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Family Events
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DTSTART;VALUE=DATE:20270425
DTEND;VALUE=DATE:20270426
DTSTAMP:20260626T062430
CREATED:20260212T153407Z
LAST-MODIFIED:20260212T154754Z
UID:21465-1808611200-1808697599@cure-eb.org
SUMMARY:London Marathon 2027
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text] \n\n\n\n\n\n\n\nThe TCS London Marathon is an incredible experience! Taking place on Sunday 25 April 2027 \, the route takes in many of London’s best landmarks including Buckingham Palace\, the Cutty Sark\, Tower Bridge and Canary Wharf. \nWith a charity place from Cure EB you could join around 40\,000 other runners attempting the 26.2 mile distance\, cheered on by the hundreds of thousands of spectators lining the streets\, while accelerating research to end the pain of EB. \n\n\n\n\n\n\n\n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”20432″ img_size=”” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][vc_column_text]Charity places come with a minimum fundraising target. \nIf you would be interested in running for Cure EB in 2027\, do contact us for more information.[/vc_column_text][/vc_column][vc_column width=”1/3″][vc_single_image image=”20433″ img_size=”” css=”” qode_css_animation=””][/vc_column][/vc_row]
URL:https://cure-eb.org/event/london-marathon-2027/
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2025/02/London-Marathon-Featured-Image-900x450-1.jpg
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