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X-WR-CALDESC:Events for Cure EB
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260426
DTEND;VALUE=DATE:20260427
DTSTAMP:20260521T222111
CREATED:20250224T155302Z
LAST-MODIFIED:20260212T153816Z
UID:20428-1777161600-1777247999@cure-eb.org
SUMMARY:London Marathon 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]The TCS London Marathon is an incredible experience! Taking place on Sunday 26 April 2026 \, the route takes in many of London’s best landmarks including Buckingham Palace\, the Cutty Sark\, Tower Bridge and Canary Wharf. \nWith a charity place from Cure EB you could join around 40\,000 other runners attempting the 26.2 mile distance\, cheered on by the hundreds of thousands of spectators lining the streets\, while accelerating research to end the pain of EB.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”20432″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][vc_column_text css=””]Charity places come with a minimum fundraising target. \nAll places for 2026 have now been allocated. But if you would be interested in running for Cure EB in 2027\, do contact us for more information.[/vc_column_text][/vc_column][vc_column width=”1/3″][vc_single_image image=”20433″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][/vc_row]
URL:https://cure-eb.org/event/london-marathon-2026/
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2025/02/London-Marathon-Featured-Image-900x450-1.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251005T090000
DTEND;TZID=Europe/London:20251005T130000
DTSTAMP:20260521T222111
CREATED:20250120T123235Z
LAST-MODIFIED:20250508T141408Z
UID:20328-1759654800-1759669200@cure-eb.org
SUMMARY:Butterfly Run 2025
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Our Butterfly Run is back on Sunday 5th October 2025 at Queen Elizabeth Olympic Park in London. \nBook now![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Please get in touch (contact@cure-eb.org) if you are interested in sponsoring the event or being one of our charity partners.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-run-2025/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2025/01/BR2025-900x450-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250427
DTEND;VALUE=DATE:20250428
DTSTAMP:20260521T222111
CREATED:20240314T171232Z
LAST-MODIFIED:20250130T113012Z
UID:19518-1745712000-1745798399@cure-eb.org
SUMMARY:London Marathon 2025
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]The TCS London Marathon is an incredible experience! Taking place in April\, the route takes in many of London’s best landmarks including Buckingham Palace\, the Cutty Sark\, Tower Bridge and Canary Wharf. \nIf you would be interested in running for Cure EB in 2026\, do contact us for more information.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \nMeet our marathon runners\n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”20399″ alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text css=””] \nAndy\nDad of 4 and uncle to Poppy\, who has RDEB\, Andy isn’t going to let a lack of previous running get in his way of completing the marathon. \n“My determination to achieve this goal though\, comes from that fact that any pain I suffer in this process will be a fraction of what EB sufferers face all day\, every day.” \nSponsor Andy[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”20398″ alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text css=””] \nDiana\nNew mum Diana laughs in the face of sleep deprivation and thought she’d add training for a marathon into the mix! \n“I am juggling family life\, work and training for the London marathon 2025! The more I learn about Cure EB\, the more I want to raise” \nSponsor Diana[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”20396″ alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text css=””] \nJames\nGodfather to Poppy\, who has RDEB\, James knows about the non-stop pain of EB and it’s spurring him on to run the marathon for Cure EB this year. \n“For my small part\, I will run this marathon as fast as possible and try and raise as much money as I can to help find a cure so that Poppy and others like her don’t have to suffer.” \nSponsor James[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”20397″ alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text css=””] \nJess\nMum to Fleur\, who has EB\, Jess has very personal reasons for fundraising for Cure EB. \n“Although there’s no cure for EB yet\, charities like Cure EB and us (me\, Jason\, Ozzie & Fleur) really do believe there will be one day very soon and fundraising is one way to get closer to this.” \nSponsor Jess[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/4″][vc_single_image image=”20400″ alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”3/4″][vc_column_text css=””] \nZach\nSerious runner Zach is ready to smash the London Marathon! \n“Running 26.2 miles is my way of supporting this mission and raising awareness for those battling EB daily. Join me in making a difference—every donation brings us closer to a cure. Together\, we can create hope and healing!” \nSponsor Zach[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/london-marathon-2025/
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2023/01/London-Marathon-Events-900x450-1-jpg.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240929
DTEND;VALUE=DATE:20240930
DTSTAMP:20260521T222111
CREATED:20240207T130309Z
LAST-MODIFIED:20241007T131917Z
UID:19445-1727568000-1727654399@cure-eb.org
SUMMARY:Butterfly Run 2024
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \n\n\n\n\n\n\n\nIt’s time to fly!\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nCure EB’s Butterfly Run is a celebration of inclusivity taking place at the Queen Elizabeth Olympic Park in London on Sunday 29th September 2024 (previously advertised as Sunday 22nd). \nWe are encouraging as many people of all abilities to run\, walk\, wheel\, or whatever you can do to complete a 1k\, 5k or 10k race. \n\n\n\n\n\n\n\n[/vc_column_text][vc_empty_space][vc_column_text css=””]Advanced booking for this event has now closed. However\, you can book tickets on the day!  \nOn the day participants just need to arrive at 9.30am to pay and register.  \nTickets cost between £10 and £25. [/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space]\n	\n		\n	\n	\n		\n	\n	\n		\n			\n				\n					\n				\n			\n		\n		\n			\n				\n					 We had a blast! Such a lovely event. Great to catch up and put our feet to good use!  \n				\n				\n					 2023 Butterfly Run participant   \n				\n			\n		\n	\n[vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” anchor=”Book_Run24″][vc_column][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” anchor=”Book_Run24″][vc_column][vc_empty_space][vc_text_separator title=”Corporate Sponsors” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][/vc_column][vc_column width=”1/3″][vc_single_image image=”19892″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/3″][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/2″][vc_single_image image=”19896″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/2″][vc_single_image image=”19893″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” anchor=”Book_Run24″][vc_column][vc_empty_space][vc_text_separator title=”Charity Partners” border=”no”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/2″][vc_single_image image=”19897″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][vc_column width=”1/2″][vc_single_image image=”19894″ img_size=”full” alignment=”center” css=”” qode_css_animation=””][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=”” background_color=”#f6f6f6″][vc_column][vc_column_text css=””] \nCure EB Family Day 2024\nIf you or a family member have EB\, why not stay for our Family Day – places are free\, but you need to register.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/butterfly-run-2024/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Family Events,Sports Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2024/02/Butterfly-Run-2024-feature-image-900x450-NEW-DATE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240421
DTEND;VALUE=DATE:20240422
DTSTAMP:20260521T222111
CREATED:20240314T170607Z
LAST-MODIFIED:20240314T171334Z
UID:19515-1713657600-1713743999@cure-eb.org
SUMMARY:London Marathon 2024
DESCRIPTION:Registration is now closed for this year’s TCS London Marathon. \nHowever\, three amazing runners are taking on the 26 mile challenge for us on 21 April 2024\, find out how to support them below! \n\nRosie Megaw\nJoe Joseph\nDaniela Jancikova\n\nIf you would be interested in running next year\, you can register your interest by emailing us.
URL:https://cure-eb.org/event/london-marathon-2024/
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2023/01/London-Marathon-Events-900x450-1-jpg.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230924
DTEND;VALUE=DATE:20230925
DTSTAMP:20260521T222111
CREATED:20230223T132642Z
LAST-MODIFIED:20230921T091241Z
UID:18444-1695513600-1695599999@cure-eb.org
SUMMARY:Butterfly Run 2023
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” z_index=””][vc_column]Advance booking has now closed.A few tickets will be available on the day\, priced between £10 and £25 [/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]It’s Time to fly! \nCure EB’s Butterfly Run is a celebration of inclusivity taking place at the Olympic Park in London on Sunday 24th September 2023. \nWe are encouraging as many people of all abilities to run\, walk\, wheel\, or whatever you can do to complete a 1k\, 5k or 10k race.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]Advance booking for the Butterfly Run has now closed. \nHowever\, a few tickets will be available on the day\, priced at \n\n10k – £25\n5k adult (age 13 & older) – £20\n5k child (age 12 & under) – £15\n1k fun run – £10\n\nIf you would like to join us\, registration opens at 9.30am outside the Timber Lodge Café in the Queen Elizabeth Olympic Park (1A Honor Lea Avenue\, London\, E20 1DY – view map). \n  \n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]Race details \nThe 10k race is open to anyone age 13 and over; the 5k and 1k are open to all ages. \nEntry for the 1k fun run is per race number only; so if you are only running alongside your child to support them\, you do not need to buy an additional entry. \nAll entrants will receive a Butterfly Run race t-shirt\, race number\, and finisher medal. \nRaces are time-chipped so it’s perfect if you’re aiming for your PB\, but it’s also a great atmosphere if you just want a great run with your family or friends. Book your place now! \nTimings \nRegistration opens at 9.30am at Timber Lodge\, E20 1DY – please make sure you register and collect your Butterfly Run race pack when you arrive at the venue. \nOur first race is the 1k Fun Run\, setting off at 10.30am. \nThe 5k and 10k runs start together at 11am\, with the 10K completing two laps of the course. \nThere will also be a free 100m dash for the kids\, after the 1k has finished\, but before the 5k and 10k runs start. No registration is required for this – just listen out for the announcements on the PA system if your child would like to take part in this. \nPrize giving will be after all races are complete. \n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]
URL:https://cure-eb.org/event/butterfly-run-2023/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2023/02/Butterfly-Run-2023-900x450-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230423
DTEND;VALUE=DATE:20230424
DTSTAMP:20260521T222111
CREATED:20230302T101708Z
LAST-MODIFIED:20230424T111732Z
UID:18473-1682208000-1682294399@cure-eb.org
SUMMARY:London Marathon 2023
DESCRIPTION:Registration is now closed for this year’s TCS London Marathon. \nHowever\, three amazing runners are taking on the 26 mile challenge for us on 23 April 2023\, find out how to support them below! \n\nJohn Halliwell\nElspeth West\nNicholas Crowson\n\nIf you would be interested in running next year\, you can register your interest by emailing us.
URL:https://cure-eb.org/event/london-marathon-2023/
CATEGORIES:Sports Events
ATTACH;FMTTYPE=image/jpeg:https://cure-eb.org/wp-content/uploads/2023/01/London-Marathon-Events-900x450-1-jpg.webp
END:VEVENT
END:VCALENDAR