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DTSTART;TZID=Europe/London:20250424T130000
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UID:20501-1745499600-1745503200@cure-eb.org
SUMMARY:Research the Cure Webinar - April 2025
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Mission EB \nDr Anna Martinez is joining us to talk about Mission EB\, the first large-scale stem cell clinical trial in EB. \nMission EB was led by Anna at Great Ormond Street Hospital in collaboration with clinicians at Birmingham’s Children’s Hospital. The trial was funded by the National Institute for Health Research (NIHR) in partnership with NHS England and NHS Improvement as well as a grant from Cure EB. \nThe Mission EB study was a double blind\, placebo-controlled\, cross-over study evaluating the safety and efficacy of mesenchymal stromal cells\, or MSCs (a type of stem cell) in 30 pediatric patients in the UK with intermediate or severe RDEB. \nSince study completion\, INmune Bio has made an agreement with GOSH for exclusive commercial use of the data and will market the treatment as CORDStrom. INmune Bio intends to support a 12-month open label study at GOSH\, to include all patients enrolled in the Mission EB study. \nThis is a must-see webinar for EB patients and their loved ones as we hear from Anna about the results and next steps for CORDStrom.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space]Register your free place[vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]When? Thursday 24th April 2025\, 1pm BST \nWhere? Online – register here \nWho? The webinar is open to all – EB patients & families\, researchers\, clinicians\, and anyone with an interest in EB \n  \nPlease note that this is a live event only – a recording won’t be shared after the event.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][vc_separator type=”normal”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \n\n\n\n\n\n\n\nHosted by Sharmila Collins\, founder of Cure EB\, this is a free event open to all\, but you must register. \nThere will be an opportunity to ask questions during the webinar\, but please also submit your questions in advance here. \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n[/vc_column_text][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space][vc_separator type=”normal”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/3″][vc_single_image image=”19918″ css=”” qode_css_animation=””][/vc_column][vc_column width=”2/3″][vc_column_text css=””]Anna is a leading paediatric dermatology consultant and National Epidermolysis Bullosa Service lead at Great Ormond Street Hospital in London. She was the lead investigator on Mission EB – the first large-scale stem cell clinical trial for children with EB\, funded by Cure EB in collaboration with the National Institute for Health and Care Research (NIHR).[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_empty_space]Research the Cure webinar registration[vc_empty_space][/vc_column][/vc_row]
URL:https://cure-eb.org/event/researchthecure-apr25/
CATEGORIES:Research Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2025/03/Research-Webinar-2025-news-research-events.png
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