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DTSTART;TZID=Europe/London:20261004T130000
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DTSTAMP:20260910T135948Z
CREATED:20260106T122621Z
LAST-MODIFIED:20260910T135948Z
UID:21344-1791118800-1791131400@cure-eb.org
SUMMARY:EB Family Day 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]An event for EB families[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]BOOK YOUR PLACE NOW[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text] \nEB Family Day\nIf you or a family member have EB\, then join us at the Queen Elizabeth Olympic Park on Sunday 4th October! \nJoin us for lunch and then\, while the adults hear from the EB experts\, the children will be entertained with games and crafts. There will be plenty of time to ask questions\, as well as for tea and cake so that families can catch up with old friends and make some new ones![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]Date: Sunday 4th October \nTime: 1.00pm – 4.30pm \nLocation: Timber Lodge Cafe\, Queen Elizabeth Olympic Park\, Honor Lea Avenue\, E20 1DY \nOur EB Family Day is an event for our wonderful EB community to come together\, have fun and catch up on the latest EB research news. It’s always a lot of fun and we would love to see you there! It is free to attend\, but you must book your place. \n [/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]BOOK YOUR PLACE NOW[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Confirmed Speakers” border=”no”][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/5″][vc_column_text][/vc_column_text][/vc_column][vc_column width=”4/5″][vc_column_text]EB research progress 2026 – Prof John McGrath \nJohn is Professor of Molecular Dermatology and Head of the Genetic Skin Disease Unit at King’s College London\, and a Consultant based at Guy’s Hospital in London\, where he is Head of the St John’s Institute of Dermatology. He is an internationally renowned expert in EB\, and a past president of the European Society for Dermatological Research.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/5″][vc_column_text][/vc_column_text][/vc_column][vc_column width=”4/5″][vc_column_text]Upcoming decorin clinical trial – Prof Jemima Mellerio \nJemima is a Consultant Dermatologist and lead of the National Adult EB service at Guy’s and St Thomas’ hospital. She is on the executive committees of the British Association of Dermatologists\, the British Society of Paediatric and Adolescent Dermatology\, and the International Society of Pediatric Dermatology. She is also a Fellow of the Royal College of Physicians.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/5″][vc_column_text] \n[/vc_column_text][/vc_column][vc_column width=”4/5″][vc_column_text]Blister fluid collection and gene editing – Dr Joanna Jacków-Malinowska & Aidin Kazemizadeh \nJoanna is a molecular dermatology researcher and Senior Lecturer at the St John’s Institute of Dermatology\, King’s College London\, where she leads a research programme focused on developing next-generation therapies for genetic skin diseases and skin cancer. Her research centres on translational genome editing and advanced delivery technologies\, including lipid nanoparticles\, to develop precision treatments for rare inherited skin disorders such as EB. \nAidin is a final-year PhD researcher at King’s College London under the supervision of Dr Joanna Jackow-Malinówska and Prof John McGrath. His research\, funded by the British Skin Foundation and Cure EB\, focuses on developing base and prime editing strategies to correct pathogenic variants that cause dystrophic EB.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/5″][vc_column_text][/vc_column_text][/vc_column][vc_column width=”4/5″][vc_column_text]EB hand therapy – Mr Ricardo Tejero-Trujeque & Andrea Cudazzo \nRicardo is a Specialty Doctor in Plastic\, Reconstructive and Hand Surgery at Guy’s and St Thomas’ Hospital\, where he also leads the plastic surgical care of patients with EB. He is a faculty member on national and international training courses\, including EB courses at GOSH and Guy’s and St Thomas’. \nAndrea is an occupational therapist with over a decade specialising in hand therapy. He works as a Senior Specialist Hand Therapist\, a role that spans hand trauma\, plastic surgery hand cases and orthopaedics\, management of chronic hand and upper limb conditions\, as well as working with EB patients in the Rare Diseases Centre.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” el_id=”TTwidget” z_index=””][vc_column][vc_text_separator title=”Register your place” border=”no”][vc_empty_space][vc_column_text]\n      \n        \n      \n    [/vc_column_text][vc_column_text]Please note: When booking a ticket\, your personal data will be collected in order to facilitate the management of\, and communications ahead of\, the event. Your email address and mobile number will not be used for further marketing purposes unless you have explicitly asked us to do so. Your postal address may be used for occasional future mailings from which you can opt out at any time\, just let us know on contact@cure-eb.org. For more information see our Privacy Policy. [/vc_column_text][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]You might also want to join us for our Butterfly Run – an inclusive\, family-friendly\, fun event – held at the same location in the morning.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/eb-family-day-2026/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/01/FD26-FEATURE-IMAGE-900x450-1.png
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