BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Cure EB - ECPv6.17.0//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Cure EB
X-ORIGINAL-URL:https://cure-eb.org
X-WR-CALDESC:Events for Cure EB
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261004T130000
DTEND;TZID=Europe/London:20261004T163000
DTSTAMP:20260727T163839Z
CREATED:20260106T122621Z
LAST-MODIFIED:20260727T163839Z
UID:21344-1791118800-1791131400@cure-eb.org
SUMMARY:EB Family Day 2026
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text]An event for EB families[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]BOOK YOUR PLACE NOW[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””] \nEB Family Day\nIf you or a family member have EB\, then join us at the Queen Elizabeth Olympic Park on Sunday 4th October! \nJoin us for lunch and then\, while the adults hear from the EB experts\, the children will be entertained with games and crafts. There will be plenty of time to ask questions\, as well as for tea and cake so that families can catch up with old friends and make some new ones![/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Date: Sunday 4th October \nTime: 1.00pm – 4.30pm \nLocation: Timber Lodge Cafe\, Queen Elizabeth Olympic Park\, Honor Lea Avenue\, E20 1DY \nOur EB Family Day is an event for our wonderful EB community to come together\, have fun and catch up on the latest EB research news. It’s always a lot of fun and we would love to see you there! It is free to attend\, but you must book your place. \n [/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column]BOOK YOUR PLACE NOW[/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_text_separator title=”Confirmed Speakers” border=”no”][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/5″][vc_column_text css=””][/vc_column_text][/vc_column][vc_column width=”4/5″][vc_column_text css=””]Prof John McGrath \nJohn is Professor of Molecular Dermatology and Head of the Genetic Skin Disease Unit at King’s College London\, and a Consultant based at Guy’s Hospital in London\, where he is Head of the St John’s Institute of Dermatology. He is an internationally renowned expert in EB\, and a past president of the European Society for Dermatological Research.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column width=”1/5″][vc_column_text css=””][/vc_column_text][/vc_column][vc_column width=”4/5″][vc_column_text css=””]Prof Jemima Mellerio \nJemima is a Consultant Dermatologist and lead of the National Adult EB service at Guy’s and St Thomas’ hospital. She is on the executive committees of the British Association of Dermatologists\, the British Society of Paediatric and Adolescent Dermatology\, and the International Society of Pediatric Dermatology. She is also a Fellow of the Royal College of Physicians.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern” el_id=”TTwidget” z_index=””][vc_column][vc_text_separator title=”Register your place” border=”no”][vc_empty_space][vc_column_text css=””]\n      \n        \n      \n    [/vc_column_text][vc_column_text css=””]Please note: When booking a ticket\, your personal data will be collected in order to facilitate the management of\, and communications ahead of\, the event. Your email address and mobile number will not be used for further marketing purposes unless you have explicitly asked us to do so. Your postal address may be used for occasional future mailings from which you can opt out at any time\, just let us know on contact@cure-eb.org. For more information see our Privacy Policy. [/vc_column_text][vc_empty_space][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_separator type=”normal”][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]You might also want to join us for our Butterfly Run – an inclusive\, family-friendly\, fun event – held at the same location in the morning.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/eb-family-day-2026/
LOCATION:Queen Elizabeth Olympic Park\, London\, E20 1DY
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2026/01/FD26-FEATURE-IMAGE-900x450-1.png
END:VEVENT
END:VCALENDAR