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DTSTART;TZID=Europe/London:20241209T130000
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DTSTAMP:20260531T092559
CREATED:20241114T103722Z
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UID:20122-1733749200-1733752800@cure-eb.org
SUMMARY:Family Forum - Losartan in RDEB with Prof Dimitra Kiritsi
DESCRIPTION:[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Prof Dimitra Kiritsi\, Aristotle University of Thessaloniki\, is joining our Family Forum online to talk about the recently published results of the REFLECT study. In this phase 1/2 clinical trial\, losartan was well tolerated by children with RDEB\, and the trial provided preliminary evidence of a reduction in disease burden.  \nJoin Sharmila and Kate as they chat with Dimitra to find out more about the trial and what this means for patients with RDEB. There will be plenty of time to ask questions\, so do join us for our last Family Forum event of 2024.[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=”.vc_custom_1731927188995{padding-top: 35px !important;padding-right: 35px !important;padding-bottom: 35px !important;padding-left: 35px !important;background-color: #F0F0F0 !important;border-color: #F0F0F0 !important;}”]When? Monday 9th December\, 1pm (UK time) \nWhere? Online – you can join from anywhere in the world \nPlease note that this is a live event only – a recording won’t be shared after the event. \nThis event is open to all Family Forum members. \n\nIf you are already part of our Family Forum\, you will be emailed a joining link.\nIf you are not yet a member\, sign up here – it’s free to join.\n\n[/vc_column_text][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_column_text css=””]Please note that Family Forum is a free\, informal group for EB patients and their families/carers. Visit our Family Forum page for more information.[/vc_column_text][/vc_column][/vc_row]
URL:https://cure-eb.org/event/familyforum-dec24/
LOCATION:Online
CATEGORIES:Family Events
ATTACH;FMTTYPE=image/png:https://cure-eb.org/wp-content/uploads/2024/11/Family-Forum-online-December-2024-900x450-1-2.png
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