It was wonderful to connect with old friends and lovely to meet some new faces at our annual Family Day on Sunday 24th September....

We were delighted to be joined by Peter Marinkovich and Suma Krishnan last week to talk about B-VEC (Vyjuvek), a gene therapy gel approved by the FDA for the treatment of wounds in dystrophic EB....

Thank you and well done to all the families that took part in Parallel London's 100m, 1k, 5k and 10k races this weekend....